ASEQ-EHAQ

L'Association pour la santé environnementale du Québec / Environmental Health Association of Quebec

Invisible No More: Advancing Accessibility, Inclusion, and Recognition of Multiple Chemical Sensitivity (MCS) in Canada

Project Summary

Invisible No More is a national research and engagement project led by the Environmental Health Association of Canada (EHAC-ASEC) and the Environmental Health Association of Québec (ASEQ-EHAQ), and funded by the Government of Canada’s Social Development Partnerships Program – Disability Component.

The project explores how Multiple Chemical Sensitivity (MCS) affects accessibility, inclusion, dignity, safety, and participation in everyday life across Canada.

The study includes opportunities to participate in:

  • Two short online surveys (approximately 3–5 minutes each),
  • One virtual focus group (approximately 45–90 minutes), and/or
  • An optional one-on-one interview to discuss lived experiences related to MCS (approximately 45–90 minutes).

The project aims to help improve awareness, accessibility, inclusion, and understanding of the barriers experienced by people living with MCS.

Participation in the Study

You may be eligible to participate if you:

  • Identify as someone living with MCS, or as a caregiver, family member, advocate, professional, or community member connected to MCS,
  • Are 18 years of age or older,
  • Currently live in Canada, and
  • Are comfortable speaking and reading English or French.

Participation begins with a brief screening survey.

To access the screening survey, click here:

Important Notice
This study is currently in the development phase. Data collection will begin only after research ethics approval has been obtained. Participation is not possible at this time.

We welcome participants from diverse backgrounds and encourage you to share this opportunity with colleagues, organizations, and professional networks who may be interested.

Optional Storytelling Participation

Some participants may also choose to participate in optional storytelling activities through:

  • written stories,
  • audio recordings, and/or
  • video recordings.

These activities will contribute to future public education, awareness, accessibility, advocacy, and knowledge-sharing initiatives related to MCS.

Participation in storytelling activities is entirely voluntary. Participants will be able to choose their preferred level of anonymity, identification, and public sharing through a separate consent process.

Ethics, Confidentiality, and Voluntary Participation

This study will be conducted in accordance with applicable Canadian research ethics standards. Informed consent will be obtained from all participants prior to participation.

Information collected through surveys, focus groups, interviews, and optional storytelling activities will be treated confidentially and used for research, education, accessibility, awareness, advocacy, and knowledge-sharing purposes related to improving inclusion for people living with MCS.

Some focus groups, interviews, or optional storytelling activities may involve audio and/or video recording with participant consent.

Data will be securely stored and accessed only by authorized members of the research team. Identifying information will not be included in reports, presentations, publications, or public materials unless separate explicit consent is provided.

Participation is entirely voluntary. Participants may decline to participate or withdraw at any time without providing a reason and without consequence.

For more information:
514-332-4320 | contact@aseq-ehaq.caTop of Form