{"id":4290,"date":"2021-07-06T13:44:46","date_gmt":"2021-07-06T17:44:46","guid":{"rendered":"https:\/\/aseq-ehaq.ca\/?page_id=4290"},"modified":"2022-12-07T12:07:01","modified_gmt":"2022-12-07T17:07:01","slug":"dead-but-alive","status":"publish","type":"page","link":"https:\/\/aseq-ehaq.ca\/en\/dead-but-alive\/","title":{"rendered":"Your Voice Matters"},"content":{"rendered":"\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:33.33%\"><div class=\"su-note\"  style=\"border-color:rgb(206, 247, 191);border-radius:3px;-moz-border-radius:3px;-webkit-border-radius:3px;\"><div class=\"su-note-inner su-u-clearfix su-u-trim\" style=\"background-color:rgb(206, 247, 191);border-color:rgb(206, 247, 191);color:#333333;border-radius:3px;-moz-border-radius:3px;-webkit-border-radius:3px;\">\n\n\n\n<p><a href=\"https:\/\/aseq-ehaq.ca\/en\/does-anybody-care\/\"><strong>Does Anyone Care<\/strong><\/a><br><strong><strong>Ren\u00e9e Gabrych<\/strong><\/strong><\/p>\n\n\n\n<p><strong><a href=\"https:\/\/aseq-ehaq.ca\/en\/lack-of-accommodation-for-a-disability\/\">Lack of accommodation for a disability<\/a><\/strong><br><strong>Ginger Major<\/strong><\/p>\n\n\n\n<p><strong><a href=\"https:\/\/aseq-ehaq.ca\/en\/i-am-tired-of-living-in-hell\/\">I am tired of living in hell<\/a><\/strong><br><strong>Olly Gabrych<\/strong><\/p>\n\n\n\n<p><strong><a href=\"https:\/\/aseq-ehaq.ca\/en\/housing-crisis-for-people-with-mcs\/\">Housing Crisis for People with MCS<\/a><\/strong><br><strong>Line <\/strong><\/p>\n\n\n\n<p><strong><strong><a href=\"https:\/\/aseq-ehaq.ca\/en\/the-stolen-life\/\">The Stolen Life<\/a><\/strong><\/strong><br><strong>S. Shepherd<\/strong><\/p>\n\n\n\n<p><strong>Dead But Alive<br>What is sensitivity to chemical products (MCS)?<\/strong><br><strong>Sylvie Hach\u00e9<\/strong><\/p>\n\n\n\n<p><strong><strong><strong><strong><a href=\"https:\/\/aseq-ehaq.ca\/en\/nowhere-to-run-nowhere-to-hide\/\">Nowhere to Run, Nowhere to Hide<\/a><\/strong><\/strong><\/strong><\/strong><br><strong>Muriel L\u00e9tourneau<\/strong><\/p>\n\n\n\n<p><strong><strong><a href=\"https:\/\/aseq-ehaq.ca\/en\/when-life-becomes-a-nightmare-my-story-of-living-with-multiple-chemical-sensitivities\/\"><strong>When Life Becomes a Nightmare<\/strong><br>My story of living with multiple chemical sensitivities<\/a><\/strong><\/strong><br><strong>Danielle Castonguay<\/strong><\/p>\n\n\n\n<p><a href=\"https:\/\/aseq-ehaq.ca\/en\/testimonial-i-suffer-too-much-i-cant-keep-quiet-anymore-message-to-my-bank\/\"><strong>I Suffer Too Much, I Can\u2019t Keep Quiet Anymore!<\/strong><br><strong>I feel inspired by a mission<\/strong><\/a><br><strong>Line <\/strong><\/p>\n\n\n\n<p><a href=\"https:\/\/aseq-ehaq.ca\/en\/when-the-invisible-illness-becomes-visible-or-monster-lady-comes-for-a-visit\/\"><strong>When the \u201cInvisible Illness\u201d becomes Visible<\/strong><br><strong><strong>Or \u2013 Monster Lady Comes for a Visit<\/strong><\/strong><\/a><br><strong>Lisa Edelsward<\/strong><\/p>\n\n\n\n<p><strong><strong><strong><a href=\"https:\/\/aseq-ehaq.ca\/en\/the-story-of-a-teacher\/\">The story of a teacher<\/a><\/strong><\/strong><\/strong><br><strong><strong>Marlene<\/strong><\/strong><\/p>\n\n\n\n<p><strong><strong><strong><a href=\"https:\/\/aseq-ehaq.ca\/en\/living-with-the-feeling-of-being-on-probation\/\">Living with the Feeling of Being on borrowed time<\/a><\/strong><\/strong><\/strong><br><strong><strong>Isabelle Martineau<\/strong><\/strong><\/p>\n\n\n\n<p><strong><strong><a href=\"https:\/\/aseq-ehaq.ca\/en\/mcs-a-life-altering-disability\/\">MCS: A Life-Altering Disability<\/a><\/strong><\/strong><br><strong>Ruth Woitowitz<\/strong><\/p>\n\n\n\n<p><strong><strong><strong><strong><a href=\"https:\/\/aseq-ehaq.ca\/en\/existing-not-living-with-multiple-chemical-sensitivities\/\">Existing (NOT \u201cLiving\u201d) With Multiple Chemical Sensitivities<\/a><\/strong><\/strong><\/strong><\/strong><br><strong>Ruth Woitowitz<\/strong><\/p>\n\n\n\n<p><strong><strong><strong><strong><a href=\"https:\/\/aseq-ehaq.ca\/en\/one-of-the-lucky-ones\/\">One of the Lucky ones!<\/a><\/strong><\/strong><\/strong><\/strong><br><strong>Debra Aronson<\/strong><\/p>\n\n\n\n<p><strong><strong><strong><strong><strong><a href=\"https:\/\/aseq-ehaq.ca\/en\/my-illness-journey\/\">My Illness Journey<\/a><\/strong><\/strong><\/strong><\/strong><\/strong><br><strong>Sophie M.<\/strong><\/p>\n\n\n\n<p><strong><span class=\"has-inline-color has-white-color\">.<\/span><\/strong><\/p>\n\n\n\n<p><\/p>\n\n\n\n<p><strong><span class=\"has-inline-color has-white-color\">.<\/span><\/strong><\/p>\n\n\n\n<p><strong><span class=\"has-inline-color has-white-color\">.<\/span><\/strong><\/p>\n\n\n<\/div><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:66.66%\"><div class=\"su-note\"  style=\"border-color:rgba(185, 208, 153, 0.18);border-radius:3px;-moz-border-radius:3px;-webkit-border-radius:3px;\"><div class=\"su-note-inner su-u-clearfix su-u-trim\" style=\"background-color:rgba(185, 208, 153, 0.18);border-color:rgba(185, 208, 153, 0.18);color:#333333;border-radius:3px;-moz-border-radius:3px;-webkit-border-radius:3px;\">\n\n\n\n<h3 class=\"has-text-align-center wp-block-heading\">Dead But Alive<\/h3>\n\n\n\n<h4 class=\"has-text-align-center wp-block-heading\"><strong>What is sensitivity to chemical products (MCS)?<\/strong><\/h4>\n\n\n\n<h5 class=\"has-text-align-right wp-block-heading\"><strong><strong>Sylvie Hach\u00e9<\/strong><\/strong><\/h5>\n\n\n\n<p>Since spring 2012 I have many debilitating symptoms on exposure to many chemical products.<\/p>\n\n\n\n<p><strong>How to live with this disease?<\/strong><\/p>\n\n\n\n<p>It is not living, but only existing<\/p>\n\n\n\n<p>It is watching others live, it is being totally deprived of a social life, it is grieving and just grieving<\/p>\n\n\n\n<p><strong>NO MORE<\/strong> going out of the house<\/p>\n\n\n\n<p><strong>NO MORE<\/strong> visiting friends and family<\/p>\n\n\n\n<p><strong>NO MORE<\/strong> travelling<\/p>\n\n\n\n<p><strong>NO MORE<\/strong> even approaching people anymore \u2026<\/p>\n\n\n\n<p>Just <strong>NO MORE<\/strong><\/p>\n\n\n\n<p>Always saying <strong>NO<\/strong> to any invitation means losing your friends, and a lot of your family.<\/p>\n\n\n\n<p>I had plans\u2026<\/p>\n\n\n\n<p>I had dreams\u2026<\/p>\n\n\n\n<p>This disease destroyed them, because there is no hope of recovery<\/p>\n\n\n\n<p>This disease is a condemnation to isolation and loneliness<\/p>\n\n\n\n<p>Signed:<\/p>\n\n\n\n<p>A living dead.<\/p>\n\n\n<\/div><\/div>\n\n\n\n<p><\/p>\n<\/div>\n<\/div>\n\n\n\n<p> <\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":15,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-4290","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/aseq-ehaq.ca\/en\/wp-json\/wp\/v2\/pages\/4290","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/aseq-ehaq.ca\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/aseq-ehaq.ca\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/aseq-ehaq.ca\/en\/wp-json\/wp\/v2\/users\/15"}],"replies":[{"embeddable":true,"href":"https:\/\/aseq-ehaq.ca\/en\/wp-json\/wp\/v2\/comments?post=4290"}],"version-history":[{"count":0,"href":"https:\/\/aseq-ehaq.ca\/en\/wp-json\/wp\/v2\/pages\/4290\/revisions"}],"wp:attachment":[{"href":"https:\/\/aseq-ehaq.ca\/en\/wp-json\/wp\/v2\/media?parent=4290"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}