{"id":3853,"date":"2021-04-29T09:44:32","date_gmt":"2021-04-29T13:44:32","guid":{"rendered":"https:\/\/aseq-ehaq.ca\/?page_id=3853"},"modified":"2022-12-07T12:10:43","modified_gmt":"2022-12-07T17:10:43","slug":"one-of-the-lucky-ones","status":"publish","type":"page","link":"https:\/\/aseq-ehaq.ca\/en\/one-of-the-lucky-ones\/","title":{"rendered":"Your Voice Matters"},"content":{"rendered":"\n
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Does Anyone Care<\/strong><\/a>
Ren\u00e9e Gabrych<\/strong><\/strong><\/p>\n\n\n\n

Lack of accommodation for a disability<\/a><\/strong>
Ginger Major<\/strong><\/p>\n\n\n\n

I am tired of living in hell<\/a><\/strong>
Olly Gabrych<\/strong><\/p>\n\n\n\n

Housing Crisis for People with MCS<\/a><\/strong>
Line <\/strong><\/p>\n\n\n\n

The Stolen Life<\/a><\/strong><\/strong>
S. Shepherd<\/strong><\/p>\n\n\n\n

Dead But Alive
What is sensitivity to chemical products (MCS)?<\/a><\/strong>
Sylvie Hach\u00e9<\/strong><\/p>\n\n\n\n

Nowhere to Run, Nowhere to Hide<\/a><\/strong><\/strong><\/strong><\/strong>
Muriel L\u00e9tourneau<\/strong><\/p>\n\n\n\n

When Life Becomes a Nightmare<\/strong>
My story of living with multiple chemical sensitivities<\/a><\/strong><\/strong>
Danielle Castonguay<\/strong><\/p>\n\n\n\n

I Suffer Too Much, I Can\u2019t Keep Quiet Anymore!<\/strong>
I feel inspired by a mission<\/strong><\/a>
Line <\/strong><\/p>\n\n\n\n

When the \u201cInvisible Illness\u201d becomes Visible<\/strong>
Or \u2013 Monster Lady Comes for a Visit<\/strong><\/strong><\/a>
Lisa Edelsward<\/strong><\/p>\n\n\n\n

The story of a teacher<\/a><\/strong><\/strong>
Marlene<\/strong><\/strong><\/p>\n\n\n\n

<\/a>Living with the Feeling of Being on borrowed time<\/a><\/strong><\/strong><\/strong><\/strong>
Isabelle Martineau<\/strong><\/strong><\/p>\n\n\n\n

MCS: A Life-Altering Disability<\/a><\/strong><\/strong><\/strong><\/strong>
Ruth Woitowitz<\/strong><\/p>\n\n\n\n

Existing (NOT \u201cLiving\u201d) With Multiple Chemical Sensitivities<\/a><\/strong><\/strong><\/strong><\/strong><\/strong><\/strong>
Ruth Woitowitz<\/strong><\/p>\n\n\n\n

One of the Lucky ones!<\/strong><\/strong>
Debra Aronson<\/strong><\/p>\n\n\n\n

My Illness Journey<\/a><\/strong><\/strong>
Sophie M.<\/strong><\/p>\n\n\n\n

.<\/span><\/strong><\/p>\n\n\n\n

.<\/span><\/strong><\/p>\n\n\n\n

.<\/span><\/strong><\/p>\n\n\n\n

.<\/span><\/strong><\/p>\n\n\n<\/div><\/div>\n<\/div>\n\n\n\n

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One of the Lucky ones!<\/h3>\n\n\n\n

Debra Aronson<\/strong><\/h5>\n\n\n\n

When I was a little girl, I woke up in the morning feeling fine. I would get ready for school but started to feel sick when I went into the kitchen for breakfast. Every morning my mother gave me cream of wheat with white sugar and milk while she read the newspaper and sipped her coffee. After a few minutes I would feel nauseated and complained that I was too sick to go to school. The pediatrician diagnosed me with school phobia and referred me to a child psychiatrist. But I loved school and the talking doctor couldn\u2019t help in the least!<\/p>\n\n\n\n

As I got older, breakfast was on the go and my morning symptoms improved. I never really wanted to eat in the morning, and my mom probably waited until I was at school for her coffee and newspaper time. Eventually I figured out that certain smells could make me sick. I needed to leave the room when a newspaper was lying around. But I kept it mostly to myself because I was just laughed at. As I got older, I noticed more odours making me nauseated, sometimes to the point of vomiting. My father wore aftershave, my mom loved cologne. My grandmother sprayed the bathroom with \u201cair freshener\u201d \u2013 I tried to hold my breath if I had to go at her house. It was so gross! Friends and family thought I was crazy or making symptoms up. Brain fog was a major contributor that got me into trouble in school – lack of concentration and a wandering mind. Because I never knew where we were when I was called on to read or answer questions, I was accused of daydreaming!<\/p>\n\n\n\n

I had many allergies, a well-recognized medical problem treated with antihistamines and allergy shots. But if there was no itchiness, swelling or hives, no one understood why I said other things could make me sick too! Food sensitivities also made me feel moderately gross. Moderate is what makes me lucky. A reaction to scents makes it harder to tolerate foods that don\u2019t always bother me.<\/p>\n\n\n\n

Some products give me a worse reaction than others. Laundry and house cleaning products, bath and hair products, soaps and perfumes really set me off.<\/p>\n\n\n\n

I recall a few years ago taking my mother to an appointment at a large cancer center in Toronto. The doctors were running late and the waiting area was crammed with people. There was a thick confluence of scents in that room and I became so sleepy, nauseated and bloated.<\/p>\n\n\n\n

I realize that I\u2019m lucky. When I find myself in those situations, if I can remove myself from the culprits, have a brisk walk, or substitute the smell that is in my olfactory memory with an odour that I can tolerate, and then the symptoms fade away quickly.<\/p>\n\n\n\n

I realize how fortunate I am that I recover fairly quickly from these episodes and really sympathize with my fellow MCSers whose symptoms are worse, more frequent and persist longer.<\/p>\n\n\n<\/div><\/div>\n<\/div>\n<\/div>\n\n\n\n

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