{"id":3708,"date":"2021-04-23T09:16:33","date_gmt":"2021-04-23T13:16:33","guid":{"rendered":"https:\/\/aseq-ehaq.ca\/?page_id=3708"},"modified":"2022-12-07T11:18:22","modified_gmt":"2022-12-07T16:18:22","slug":"your-voice-matters","status":"publish","type":"page","link":"https:\/\/aseq-ehaq.ca\/en\/your-voice-matters\/","title":{"rendered":"Your Voice Matters"},"content":{"rendered":"\n
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Does Anyone Care<\/strong><\/a>
Ren\u00e9e Gabrych<\/strong><\/strong><\/p>\n\n\n\n

Lack of accommodation for a disability<\/a><\/strong>
Ginger Major<\/strong><\/p>\n\n\n\n

I am tired of living in hell<\/a><\/strong>
Olly Gabrych<\/strong><\/p>\n\n\n\n

Housing Crisis for People with MCS<\/a><\/strong>
Line <\/strong><\/p>\n\n\n\n

The Stolen Life<\/a><\/strong><\/strong>
S. Shepherd<\/strong><\/p>\n\n\n\n

Dead But Alive
What is sensitivity to chemical products (MCS)?<\/a><\/strong>
Sylvie Hach\u00e9<\/strong><\/p>\n\n\n\n

Nowhere to Run, Nowhere to Hide<\/a><\/strong><\/strong><\/strong><\/strong>
Muriel L\u00e9tourneau<\/strong><\/p>\n\n\n\n

When Life Becomes a Nightmare<\/strong>
My story of living with multiple chemical sensitivities<\/a><\/strong><\/strong>
Danielle Castonguay<\/strong><\/p>\n\n\n\n

I Suffer Too Much, I Can\u2019t Keep Quiet Anymore!<\/strong>
I feel inspired by a mission<\/strong><\/a>
Line <\/strong><\/p>\n\n\n\n

When the \u201cInvisible Illness\u201d becomes Visible<\/strong>
Or \u2013 Monster Lady Comes for a Visit<\/strong><\/strong><\/a>
Lisa Edelsward<\/strong><\/p>\n\n\n\n

The story of a teacher<\/a><\/strong><\/strong><\/strong>
Marlene<\/strong><\/strong><\/p>\n\n\n\n

Living with the Feeling of Being on borrowed time<\/a><\/strong><\/strong><\/strong>
Isabelle Martineau<\/strong><\/strong><\/p>\n\n\n\n

MCS: A Life-Altering Disability<\/a><\/strong><\/strong>
Ruth Woitowitz<\/strong><\/p>\n\n\n\n

Existing (NOT \u201cLiving\u201d) With Multiple Chemical Sensitivities<\/a><\/strong><\/strong><\/strong><\/strong>
Ruth Woitowitz<\/strong><\/p>\n\n\n\n

One of the Lucky ones!<\/a><\/strong><\/strong><\/strong><\/strong>
Debra Aronson<\/strong><\/p>\n\n\n\n

My Illness Journey<\/a><\/strong><\/strong><\/strong><\/strong><\/strong>
Sophie M.<\/strong><\/p>\n\n\n\n

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Over one million people have been diagnosed with the disability of multiple chemical sensitivity (MCS) of which 75% are women and around 50% are seniors. (Statistics Canada 2016). The number of diagnosed cases is growing in Canada (Statistics Canada 2015-2016). Similar data also shows significant gaps in unmet health needs, and that sufferers of environmental sensitivities\/MCS also experience socio-economic disadvantage and higher than normal degree of activity limitation.<\/p>\n\n\n\n

This disability is less known, under served, and largely ignored across our great country.<\/p>\n\n\n<\/div><\/div>\n\n\n\n

Dear members and friends,<\/p>\n\n\n\n

Thank you for taking the time to read this message.<\/p>\n\n\n\n

We know how debilitating this health condition, environmental sensitivities, can be. How it literally affects you suddenly and takes your life apart at the seams. From one day to the next, things can take a turn into a downward spiral. Everything you know, are familiar with, and love, is threatened and often lost \u2013 as you struggle to cope, sometimes from hour to hour.<\/p>\n\n\n\n

You watch hopelessly as the life you once knew fades into the distance.<\/p>\n\n\n\n

Sometimes support and help from family and friends makes this tolerable to an extent. Your personal freedom has been curtailed. For those who are on their own with no support, it often is a constant, dreadful experience.<\/p>\n\n\n\n

We admire your resilience, strength, ingenuity and courage. How you never give up and how you think of ways to cope in the face of insurmountable challenges. Often, on your own.<\/p>\n\n\n\n

But where are your stories. Who carries them? Now and then we see press reports as though these are isolated cases. We know over one million people have been diagnosed with Multiple Chemical Sensitivities and as yet, there is no Canadian data for the other sensitivities.<\/p>\n\n\n\n

We want to provide a place for you to tell your story. It can be as short or as long as you wish. You can use your name, or a nickname. We will edit your story and return it to you for approval, after which it will be translated and loaded on the website. It may be even sent out via social media for education and awareness in the general public.<\/p>\n\n\n\n

You may be wondering where to start your stories. Here are a few suggestions:<\/p>\n\n\n\n

Try to keep your stories up to 1000 words, or four pages. Font: Times New Roman 12, double spaced. However, we will accept any length provided by you.<\/em><\/p>\n\n\n\n